Autism Family Orientation Clinic

My goal for the next couple of postings it to type up all of my notes in my ever growing pile of papers. I need to clear it out & file some of the older things. So, today I will be noting what I learned from a Easter Seals clinic that my husband & I attended in July 2011. I'm a bit behind........

This one-day clinic was specifically designed for New Diagnosis Families. The class was divided into 5 parts: What is an Autism Spectrum Disorder? What causes Autism? What happens now? What can I do to help? and What can I expect for the future?

What Is Autism Spectrum Disorder?
*Autism is a complex, brain-based developmental disability that typically appears during the first 3 years of life.

*Impacts the typical development of the brain processes related to social interaction and communication skills.

*People with autism typically have difficulties with verbal and non-verbal communication, social interaction and leisure or play activities.

*Autism is a life-long disability.

*Currently, there are a lot of studies being done on the brain of people with autism. Some early results are showing that sizes of parts of the brain are different than the average brain.

*High-functioning means the person has a high IQ.....not that they can cope well.

*There are several autism diagnosis: Classic Autism (this is Ethan's category), Asperger's Disorder, Pervasive Developmental Disorder. Easter Seals told us that in the year 2014, there will no longer be categories. All will receive a Autism Spectrum Disorder.....no longer separate categories.

*Sensory sensitivities are actually painful to the individual.

What Causes Autism?

*We don't know!

*Many studies are being done to discover the origin. They do know that it is strongly genetic. It is generally regarded to be of neuro-biological origin. Researchers suspect that there are a number of different genes that, when combined together, increase the risk of autism.

*In 1998, a very small study (only 12 subjects) was published that suggested a causative relationship between the MMR vaccine & autism.  This caused many families to choose NOT to vaccinate their children.

*However, this study was retracted in 2010 by the same authors of that study as well as the medical journal that printed it. "We wish to make it clear that in this paper no causal link was established between MMR vaccine and autism as the data were insufficient."

*The Immunization Safety Review Committee on MMR Vaccine concluded that there is NO association between autism & the MMR vaccine.

*Another theory has been tested & tried is the Gluten-free, Casein-free diet. However, Dr. Susan Syman of the University of Rochester reported on her study that shows this diet does not appear beneficial for children with autism. "The removal of gluten and casein from the diet of a controlled group of young children with autism did not demonstrate a change in sleep habits, bowel habits, activity or core symptoms of autism," Hyman said.

*However, on a personal note, more the half of the people in our class told us that this diet has helped their children TREMENDOUSLY. So, I say...if it works, great. If not (as in Ethan's case), great.

*There are several theories being tested: gastrointestinal abnormalities, immune dysfunction, impaired detoxification, nutritional deficiencies or imbalances, and so on. However, overall, at this time, there is little solid, scientific evidence to support these proposed biomedical causes.

What Happens Now?
*Research has show that early detection and intervention can make a significant difference in the life of a child with autism.

*In fact, with appropriate early intervention services, from ages 3-5, between 20% and 50% of children diagnosed with autism will be able to attend mainstream kindergarten. (This is why I am so passionate about Ethan's early intervention.)

*Our instructor told us this....If the child has spoken words by kindergarten & there is a high cognitive development, studies are showing that that child has a high likelihood of typically functioning in the adult world.

*There are several types of therapies to consider: Applied Behavior Analysis, DIR Model Floortime, TEACCH Structured Teachin, Speech-Language Therapy, Occupational Therapy, Sensory Integration Therapy, Social Stories, PECS, Relationship Development Interventions, Music Therapy/Auditory Integration Training, Assistive Technology, Special Diets, Vitamin Mineral Therapy, Chelation Therapy, and Medication Therapy.

*When choosing your intervention strategy, remember that each child is unique & have different needs. Base interventions upon the particular strengths and weaknesses of the individual child. Usually, a multidisciplinary approach is recommended.

*Best Practice Guidelines: Starting early is very important, More intensive treatment leads to better outcome, Family involvement is crucial, and Intervention should be individualized to best meet the needs of the child and family.

What Can I Do To Help?
*Parent Tool #1 - Increase Environmental Stucture - We all use visual aids & schedules, but it is critical & effective way to support your child.

*Parent Tool #2 - Have Fun with Your Child! - Don't let them withdraw into their own world....lure them out gently & creatively.

What Can I Expect For The Future?
*We don't know. However, we can promise that your child will continue to grow, to change & to learn! It's up to all of us to help them to reach their maximum potential!

*With appropriate services & guidance, all people with ASD can learn to be part of the world around them, and live a meaningful and productive life.

*If you're willing to learn from your child and love him/her unconditionally, you will find your life enriched by the experience. It happens all the time. Parents and family members the world over become more compassionate, learn the power of love, and discover reserves of courage, determination, creativity, and fortitude they never knew they possessed. And you will too!