During our Month of Doctors, one of the doctors asked me this question. "Who is following Ethan's autism?" I can only imagine what the look on my face conveyed as I stared at him wondering what he meant. And then I asked him, "What do you mean?" This doctor said he wanted to know who was "in charge" of following Ethan's progress in the area of autism. I told him of the different organizations that we were a part of....but I still don't know if that answered his question as he looked at me equally confused. Finally, I laughed and said, "I guess I am!"
Just like anything medical, I believe that we must take charge of our own path. Doctors, therapists, teachers, and others should be a BIG part of any kind of diagnosis. They have knowledge that we don't, and we need to seek their advice & direction. However, in the long run, where does the responsibility ultimately fall??? To ourselves. WE are in charge of seeking help, finding resources, keeping doctor appointments, participating in therapies, and so on. NO ONE will MAKE us to this....we must take this on ourselves. It is our responsibility.....not anyone else's.
And since Ethan is only 4 years old, his care falls to his us, his parents. No one else is responsible for it. And, honestly, there isn't anyone that I trust to do this job other than me! Thankfully, we have been very blessed for it to be able for me to be a Play At Home Mom since the day Ethan was born. Not that I don't have other responsibilites or interests, but taking care of him is my number one priority. And I would jokingly say, "Sorry Husband," but Corey & I have decided that.....for us......this is how we both want it to be for this moment in our lives.
So, when Ethan was diagnosised with autism at 35 months old, I knew that the majority of this would fall under my care. Not only was (am) I Ethan's primary caretaker, but I have a background in education & could pull from this resource. (And I do so often!) For the first year of living with autism, this responsibility was an overwhelming & all consuming task. But here it is....17 months later....and it's not all I think about nor is it as overwhelming. (Thank You, Lord!!!)
And today, because of our seeking & learning & persistence & prayer, Ethan is doing so well! In this last Month of Doctors, Ethan has met so many new people. When I inform them that he has autism (doctors & nurses), almost all of them have said, "I would have never known that if you hadn't told me."
THANK YOU TEAM ETHAN!!!!!!! HOW AWESOME IS THAT TO HEAR!!!!!!!
So, who is following Ethan? Well, I guess I'm in charge....I'm the leader/co-ordinator. But really....there are so many people who are working with him, praying for him, and cheering for him. And I think that we are all very excited to see what God has in store for this little guy!